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May 31, 2009

Sit Down With Frustration, Stand Up With Hope

foil mom 2.jpg
I have learned today that one thing my kid can't handle is a play-date with more than one kid at a time.  He becomes heated, over excited, surly, frustrated, freaked, impossible, and the aftermath is twice as bad.  Right now it is impossible to talk to him.  He's hurting himself with his frustration because he doesn't know how to deal with it.  Banging his foot hard against the wall.  Partly to get our attention, partly because he's got this intense pent up energy spiraling out of his control, making him feel worse and worse.  Nothing comes out of his mouth that isn't a barking yell or an order or nasty rebuke of any help we try to give.

It comes up as if from nowhere and takes hours to dissipate.  I know he'll feel better if he eats but his perception of everything is completely tweaked so that his food is too hot right now but in two seconds it will be too cold.  Nothing will feel right, look right, sound right, or be right.  Until the frustration abates.  Which is almost impossible because absolutely every noise, interaction, and stimulation raises his frustration level even higher.  Where's the ceiling to his rage? 

Finally I hear the crying has stopped.  There is a fifty-fifty chance that his nose has started bleeding and he's sitting there letting it drip on his bed in big quickly coagulating puddles that will permanently stain everything because I am lousy at getting stains out of anything.  I feel too tired to go and find out.  I'm all worn out. I've been all worn out for years.

My own frustration levels are high from trying to navigate his.  I want to scream at him at the top of my lungs.  This may have the temporary effect of out-freaking him into silence but then I am the mom who screams at her kid who has a mental disorder that he doesn't have control of.  It's like yelling at a kid for having crooked teeth. 

Now it's totally silent in his room.  What I really need to do is watch a movie for a few hours, drink a six pack of beer, and pretend I don't live in this constant state of stress.  And I will.  I will drink that six pack of beer and I will watch the movies but I won't relax until my kid is asleep which won't be for another few hours since he has trouble going to sleep.  When he's awake there is no relaxation.  There is no rest.  Ever.  When he is awake it requires Philip and I to constantly anticipate the next step: what will it take to get him to eat his dinner so that at least he isn't frustrated from hunger?  How will we get him in his pyjamas with the least amount fuss and fight?

Breaking News!

Max just announced to me that he was done with his food.  I said "Well done!" and then he said from his room "And I calmed myself down by taking deep breaths."  So I told him how proud I was of him for doing something to help himself calm down.  And I truly feel it because, folks, that is the very first time (to my knowledge) that he has taken steps on his own to reduce his frustration.  Yes, it took a huge scene, floods of tears, parents close to yelling down the house, and him trying to break his toe first, but this is the kind of initiative that kids with ADD lack and it is very hard for them to develop these self soothing self helping skills.  This is evidence of our therapy dollars beginning to pay off.

I sat down to write about my bitter frustration and I will do so again and again for many years because that's what life is like for parents of kids with ADD.  Every single day is like this to some degree.  Charged with emotion, rage, shocking mood changes, flashes of brilliance quickly buried under the weight of the challenge our daily rituals pose.  This is not an easy life and some days I wish I wasn't living it.  But that little dose of what might become possible, a kid who can learn to manage his own challenges, that gives me hope, which I didn't feel when I sat down to this post.

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Comments (10)

Kathy:

I've been crying through this post, feeling the sheer angst of it all yet not, because I'm not there dealing with it. You are having to give out so much of yourself with very little left for you and that is a huge drain. This brings it all back for me and I wondered at the time how I would make it through. But then one day something wonderful happens, like Max taking deep breaths to calm down and telling you about it. Then another and another and soon they are in high school and making their way. One day you will get through this but until then I'm here to support you through the struggles and celebrate the successes.

Philip:

He needs to blow that angst out of his mind every so often, I think. He was banging on the wall with his pillow, really hard. I went in there, "HEY! What are you doing?"
"I'm banging my pillow on the wall to get out my aggression."
I'm like... "okay."

After he calmed himself down, we played some Legos, read, and wound down. Pajamas and tooth brushing with no hassles. He ended up with a stomach ache, though. Residual stress.

Anonymous:

I think it's great he was able to calm himself down and even use his pillow as an outlet. And Kudos to you and Philip for trying to get him into therapy now.

My middle sister was not diagnosed with ADD and bi-polar disorder until she was in her teens. She never wanted to accept it or take the meds (which helped her immensely). Now she is 30 and still won't accept the fact....which means her whole family still deals with all her emotional outbursts and dramas (and have become estranged because of them).

OOps - that was me...not anonymous

pam:

Glad that Max is finding ways to calm himself. Its a good start right?

Hey, that's a huge thing! Hell, plenty of "normal" adults have trouble figuring out how to deal with stress...it had to be exponentially harder for Max, yet he DID IT!

As I read this post my heart ached for you, Max and Philip. When I got to the end I felt, I don't know? I guess hope sums it up. Hope for more good moments, hours, days for all of you. -Tonia

geo:

A lovely post, your renewed hope like a lifeline tossed out to other struggling souls...thank you, from one of them

Wow,

That really is a huge step forward for him. The ability to make conscious decisions about how to appropriately deal with his emotions is going to help him in every facet of his future.

It might help to tag these posts if you can.. they might help a little on the days when the end of the tunnel feels a long way away.

Kind Regards
Belinda

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