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July 7, 2009

We Keep On Living Until We Die

daisy up 2.jpg
Tonight it's going to be one big word soup.  I need to avoid exhaustion so I'm going to go to bed before 11pm for the second night in a row.  I have a queer feeling as though my book may suffer for my absence but I have to vacuum, play chess with my kid, visit with friends, and cook food.  I would like to escape to a mountain retreat (with no ticks) to write until that sucker is completely hammered out, but that's not what's going to happen.  I miss my characters and I feel their lives hanging, waiting for me to come back, to exhale the next words, to show them the next thing.  They will have to wait.

I don't have time for a really well worked anything, but I have thoughts I would like to expel from my head.  More about faith, belief, and miracles.  A commenter, who we'll call "Jo", because that's what she calls herself, has suggested that faith need not be religiously centered, that it can be about letting go of control, about letting go of our egos enough to heal.  Her unfortunate way of expressing herself has made me feel almost as though she's telling me that I could heal, if only I didn't have such a big ego.  She also mentions my disability with the qualifier "real or imagined".  These comments of hers are odious to me.  They call into question not only the size of my ego, suggesting that the fact that I am not healed is somehow connected to the enormous size of my ego.  It also calls into question whether or not I'm actually suffering from a real illness or just imagining one.

She also puts "biting" in quotations which is mystifying.  When I said I bit myself until I bled I meant it really, I really did.  And I didn't bite myself often or for long; eventually (as most people here know) I began cutting myself.  Even that ended after a couple of years.  I don't harm myself physically anymore (except for the beer and cheese) but the desire to do so never goes away when I'm under acute stress.  You want to know why? 

BECAUSE I HAVE MAJOR DEPRESSIVE DISORDER, GENERALIZED ANXIETY DISORDER AND OBSESSIVE COMPULSIVE DISORDER.

I suppose if you don't believe that mental illness is real you might wonder how come I haven't just meditated this crap away?

Ego for me is, at best, a very warped and difficult concept.  So I'm glad someone brought that up.  Finally, we can examine what my ego problems are.  Part of my perpetual problem is that I feel infinitesimally small, matterless, unimportant, invisible, impotent, stupid, inadequate.

Although I have always known exactly who I am, I have a very strong sense of what I'm about, I have never felt confident that this person I am  really matters.

The over-riding sense of self that I have had my whole life is this:

I AM NOBODY.  I DON'T MATTER.  I AM NO ONE.  I AM INVISIBLE.  I WILL FADE INTO NOTHING.  I AM A NOTHING.  I AM NOTHING.  I AM NOTHING.


I will take this moment to say that I have worked tirelessly on myself to develop a sense of pride, a sense of belonging in whatever place I'm in, a sense that I matter, a sense that I am someone to someone.  Because deep inside myself I still fight this whispering voice:

YOU ARE NOTHING, YOU LITTLE SHIT!

I don't think my ego is getting in the way of healing.  I think what's gotten in my way of healing for many years are people who tell me that I would be better if I tried harder, that I would find peace and all the abundance of the universe if I just trusted, if I just believed, if I just did yoga, if I just drank milk at night, if I just took St. John's Wart, if I just concentrated, if I just loved myself a little more (!!), if I took more B12, if I gave up dairy, if I gave my heart to Jesus, if I had five children, if I stopped swearing, if only I would take colloidal silver, if only I would listen to God and pray, if I only ate whole wheat noodles, if only I stopped eating wheat at all, if only I would accept who I am, if only I would stop fighting what I can't control, if only I would see that L. Ron. Hubbard isn't a creepy mother fucker* but that he has the answers to everything in his own complete fictional version of life on earth.

I think a lot of people are unaware of the true voice of my ego because I have developed a necessary bravado to bluster my way through life.

The first time in my life that I finally started "healing" and finding peace with myself is when I got an official diagnosis and a psychologist said to me "This is not your fault.  You aren't struggling because you're not trying hard enough.  You have a mental illness and you were most likely born with the wiring that makes you this way, and circumstances** may have worsened the problem, and there's no cure, you will always have it- but you can help yourself improve and medications can help you live more comfortably so that you don't want to hurt yourself when someone hurts you, so that you don't want to die."

That was a powerful moment for me.  But healing, if we're talking spiritual here, is not an easy thing when your illness has a constant grip on your emotional and mental life.  My whole life has been about not being in control.  My whole life has been a struggle to find enough of it to survive.  For me to let go of what control I have would be tantamount to suicide.

Which is enormously ironic.

I just finished watching "Kung Fu Panda" with Max, again.  The whole predictable theme of the film is "All You Have To Do Is Believe".

And I think there can be no message more misleading, more false, and more destructive than that.  It is as officious and untrue as the Beatles sentiment "All You Need Is Love."  No, that's not all you need.  Everyone needs a hell of a lot more than that.

I'm not saying I don't believe that people can achieve amazing things.  They can.  I am a die hard fan of the underdog.  I am the underdog.  I believe that people can achieve things that SEEM impossible.  I believe that people can surprise themselves with what they can do that they didn't know they could do.  I believe that people can overcome a lot of shortcomings and bad shit.  I believe that people can change, which is the closest I come to believing in miracles.

But I also believe that to achieve anything we have to work our asses off.  It's not enough to "just believe".  Are you fucking kidding me?  Look at Obama, people are saying things like "We never thought it could happen!  It's a miracle!"  It's not a miracle.  The dude has worked his ass off.  He got himself an education, he has had to run the gauntlet of politics as a person of blended races.  He has worked hard, he actually voted against the war when all the other stupid-ass politicians were too afraid to do it.  He has worked, dammit, he didn't sit around believing he could just fly on wings to the white house.  Fuck that shit!

I don't even think you have to believe in yourself completely to achieve great things.  Why?  Because I believe that in trying for things, whether we believe we are capable or not, we can surprise ourselves.  I didn't believe I would get my design accepted into the apron book.  I wanted it, I desired it, I knew I was good, but I didn't believe I was good enough to get in.  What I did believe was that if I didn't put my very best effort forward, if I didn't make the charge with my javelin thrust straight- that I would never know.  I would never know.  So I put my heart into making my design.  I put my mind into it, I put all my skill into it and I made something that I was proud of.  I actually submitted two projects I was incredibly proud of and only one got picked.  Luck of the eye.  Luck of the judge.

I stand by my denigration of faith as a concept to live by as understood by people who want everyone to have "faith" in the power of the almighty, in the goodness of Christ, in the miracles of God.  I don't believe in this whole crap language of God and Gurus and "enlightenment".  It always comes back to the elemental for me.  The flowers in bloom.  The minerals that thrust to the crust of the earth, the soil, the tang of iron in the air, the whole system of stars.  The magic of life, for me, is that we keep on living until we die.  The magic for me is simple and real.  The magic is that I can still love humanity even though I often feel outside of it.  The magic for me is that no matter how many seeds I plant that die, there's always one that is so determined that it rises from the primordial soil of my garden, clean, light green, new, and eager. 

There is no corporeal healing for people with chronic illness.  So I will deal with it every day of my life until I am ash.  Some days, some months, some years even will be much better than others.  I may go long periods of time without sharing what I am struggling with because people get tired, (understandably), of hearing about the negative.  It must be ameliorated with hope.  It's what I, myself, long for.  I try to give it to the people I know, the people I wish to know, and the people I know are like me.  I don't share this dark stuff every day because some days I find hope, I find the most incredibly gorgeous roses in my own yard and I want to share that.  I make the most amazing food, and that's enough for all of us a lot of the time.  To hold onto these little pieces of beauty, of pure love, of simple joy.  It may not over-ride the long hours of night, it may not cure us, or solve world hunger, but I look for these globes of light wherever I can and sometimes there are enough that people forget how messed up I am.  How hard I find it to traverse social life.

I have a few thistles growing in my yard right now.  Part of me wants to rip them out right away (if only I could muster up the energy and the time) but another part of me sees these bristly, sharp, mean big plants and sees my own heart there.  They seem unapproachable, austere, painful, and just when you are cursing your loudest at the needles plunging into your surprised leg, you notice the flower: the completely impossible flower!  The buds swell, covered in spines, and then they open to this magnificent hopeful regal purple and suddenly it's all worth it.  All the danger of impalement. No, not just the danger, the reality! of impalement.  Even the most spiny forbidding of plants has flowers that open up under the sun and reach for your eyes out of the wild tangles of unwanted "weeds". 

There is always a lot of "wild" in my garden.  And there is always a lot of wild in my heart too.




*Oh, I'm sorry.  That was harsh.  It is rare that I use that expression.  I find it coarse, harsh, and nasty. I think it applies in this case and I'm sticking to it.

**There are some circumstances that I cannot share.

« Hope Is Wanting, Hope Is Desire | Main | What The Sunshine Brought »


Comments (13)

I am at work so I need to be quick. Excellent post. I remember telling the mom of a friend of mine when I was 20 or so, that I felt like a styrofoam peanut (used to in packages for shipping things.) Insignificant and ultimately worthless. That feeling has been overwhelmingly strong at times, other times it has lessened. It is always with me though and I expend a lot of energy fighting it off. As you know, it can be a dance on the razor's edge. Hope is what keeps me going.

Fiona:

Very well written. To the extent that I "know" you through your blog posts, you seem to be an amazing woman. Eloquent, strong, determined, talented and beautiful. However, no matter how many times people tell you that, you will perhaps never truly see it yourself!

amy:

I look forward to your blog posts and I wonder why exactly when they aren't full of happy things all the time? I think because your purpose is to share and help others by letting them know they are not alone.

You know is wasn't me I hope, even though I share the same name.
I live with someone who has depression, I don't blog about it as it is his story not mine, but I'd never be such a fuckwit as to suggest you could decide to think yourself better from mental illness. If only.
You wield words so well.

No way did I think that was you Jo!!!! I have been on line friends with you for at least two years and you have never said anything unkind or stupid. It did feel kind of spooky though.

I continue to appreciate all of your comments this week. Very tough week apparently! Fiona- thanks for piping in too and for the kind words.

Tonia- I know that you must fight similar self image problems, most people like you and I do actually have huge problem with self esteem which depression continually erodes. Which is so sad. Because healthy self esteem really helps to deal with it. So we have to just keep working on it. All the time!

Amy- I'm glad that you feel there is something worth coming back to here even when there's no sunshine. I hope to post some more sunshine soon too.

Laura:

People who say things like "real or imagined pain" are the ones who have been lucky enough to think that chronic pain = you need to take tylenol every once in awhile, so shut the hell up you whiner. They have NO idea. When you try to explain, they think you MUST be over exaggerating.

Religion works for some people, those that can believe in things they cannot see and rely on one book. Sometimes, I like the idea of it (an all knowing, all loving god who has your best interest in mind, doesn't that sound just fabulous?) but really, for me it doesn't compute. I've chosen my loose "religion" to feel connected to the past and as a social thing (occasionally), but I don't think any god or being from the universe is going to heal me. You know what helped? A neurosurgeon.

I love your blog because you are so bitterly honest with who you are. You are honest about the progress you have made and the progress you are still making and I really respect that. And you are a damn good writer. I am looking forward to your book!

Anonymous:

Beautiful, Angelina.
Several years ago, a cousin of mine was, after many difficult years, diagnosed with mental illness. A diagnosis he did not accept. Remembering my own, and my entire family's, ignorance at the time, I want to weep. And now I don't know where he is. Or if he's alive.
Never doubt that the words you write here matter.
NM

I'm only going to comment specifically on the issue of your thistles... because it's applicable to all the rest...

do NOT rip them out. I repeat: DO NOT RIP THEM OUT. Every time you pull up a thistle plant, you leave a thousand little root hairs in the soil which then sprout into a whole lot of little NEW thistles. So what you do is you let them grow until they flower. When the flower opens, cut them close to the ground. Just cut them off with clippers or a scissor... the bulk of the plant's energy is above ground in the flower. Cutting it off while it's working so hard up there will weaken the plant overall. You may have to repeat the process with the same thistles for another round or two... but they will eventually lose strength and die.

I made the mistake of pulling out a thousand thistle plants in the beds at the old house and now there are a GOJILLION thistle plants. It's hideous how many there are... and so at the new place, I've implemented this new procedure and it's working.

I'm too bleary-eyed to elaborate on just how this applies to everything else... but I'm sure it does. ; )

xoxoxok

I know I can't say anything that will make it any better except that I am here and I hear you. I can't say that I understand exactly, but I can say that I care.

A separate soul in another place and yet i know how you feel almost exactly.I cannot say i know exactly how you feel because that is a lie.

I have dealt with this for my whole life and it will not go away.Pills seem to help some..but i am not on anything right now.

I literally feel i am worthless at times.I feel that if i went away all of those people that put up with me would not have to anymore.Even though they tell me no no you mean the world to me.. no no i love you...I hear their words but i mostly do not believe them.There are no positive thoughts.All there is is a day by day struggle to go on..some days i like you find a reason to go on.But it is not easy.. i realize life was not meant to be easy..but i have to say that hearing people say things like get over it or it doesn't exist or you are fine.. IM NOT FINE.*growls*

What i am is human... what i have realized over time is that my greatest creative moments come when i am sick of the world.sick of looking out my window.sick of being alive.I wont give up and as i read your post.I have to tell you that even if i never meet you..i am floating in almost the same bubble of despair as you.

I send you strength
I send you what hope i can spare
I send you a prickly heartfelt hug

http://www.youtube.com/watch?v=5DUCKGyojpE&feature=channel_page

just keep on living..its what we must do.

Kelly- thanks for the advice! I will let them bloom so I can cut a bouquet and then hack to the ground but leave the roots intact. Good advice! And I do believe it applies elsewhere in life as well, yes!

Sarah- you are such a caring person! I'm lucky to work with so many great women! thanks for the support and also- for people like me your comment is perfect, admitting to not totally understanding but caring anyway is honest and thoughtful.

Jaqueline- I just checked out your blog and there are some great lines in that poem on the front page! I do believe that we have had a very similar emotional/mental experience of life. Yes- to keep on living is what we're really born to do and also keep on talking about the stuff you're experiencing, whether in your poetry, in prose, in conversation, because the more of us to just make it an every day conversation- the easier it will become for others to seek help and find understanding. So keep at it!

taj:

I get it. Some days I suck, some moments I win and I get to celebrate without remission. I always have the acute sensation of smallness, of nothingness, of stupidity, and guilt at the fact that somehow I'm just not "living' up to my potential. But we do press on, and we are all of that shit and none of it depending on what day it is and what environmental/mental factors happen to be the weather of that day/hour/minute. Good grief, it hurts to be that sensitive, but what choice do we have?

Thank you for all your comments, but the time for comments is now over. Comments have been turned off on the entire site.


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